Wishing You Well On Easter

Thank you to those who continue to write, email and post your well wishes for Charlotte and her family.  Medically, Charlotte is doing very well.  Some of the scars of her surgeries have faded, and it is hard to remember what she looked like before she had her nose.  She has learned to use makeup to help cover her scars for special occasions.  She likely will have surgeries to help smooth out some of the scar tissues on her face before any work begins in reconstructing her ear.

In the last post, we shared that Charlotte was heading to school.  Because she missed so much school while she was undergoing her facial reconstruction, she had a difficult time transitioning into fourth grade and keeping up with her peers.  In February, they suggested that she repeat fourth grade.  Rather than have her continue to struggle the rest of the year, we decided to move her into a third grade class for the remainder of the year.

She is performing better in the third grade class, but continues to struggle in some core areas, reading in particular.  Charlotte has not been evaluated for learning disability since she was in Kindergarten and given her boost of confidence thanks to her new nose and the loving support of many of you, we suspect that she may be struggling due to more than shyness and confidence concerns.

Charlotte has missed too many days this year to be evaluated by the public school district, so she will see a specialist with community mental health this week.  We hope to learn more about ways that we can assist her with her studies and help her to be a proficient reader and successful student.

We had just settled into a period of normalcy when, just a few weeks ago, Charlotte’s uncle Tom was diagnosed with stage four colon cancer that had spread to his liver.  A surgery attempt just days before his 62nd birthday this St. Patrick’s Day proved unsuccessful in removing a tumor in his colon.  This weekend, we learned that the cancer has taken over his liver and without it functioning, he has a matter of weeks to live.  Tim, Charlotte’s adoptive father, is heartbroken at the prospect of losing his twin brother, whom he has worked alongside for nearly 40 years at Sara Lee.

The doctors don’t feel they can do any more for Tom and are sending him home in the care of hospice tomorrow.  As we prepare our Easter Sunday dinner, we will be short at the table as Tim is by his brother’s side at the hospital.   At this point, only a miracle can save Tom, so we ask you to please pray for one.  And, without one, we pray for help through this difficult time for our whole family.

We will have a family get-together on Saturday to celebrate Tom’s wonderful life, in which he made friends with nearly all he met.  Please also help pray that Tom is strong enough enjoy at least one more family gathering.

Thank you , to everyone who continues to care about our little amazing spitfire of a girl, and we wish you a blessed Easter.

This entry was posted on March 31, 2013. 1 Comment

Back to School

Charlotte is going back to school for the first time this year.  She popped out of bed bright and early today, eager to get started.  She wore a new headband and some concealer over her scars.  We will update you later today to let you know how her first day went.

This entry was posted on January 7, 2013. 4 Comments

Backstage at the Nutcracker

Yesterday, Charlotte had another first!  She enjoyed the ballet live for the first time.  The Grand Rapids Ballet Company and students of the Grand Rapids Ballet School welcomed Charlotte backstage before and after their performance of “The Nutcracker.”

The Grand Rapids Ballet Company was generous to invite Charlotte to the performance along with three family members for the show.  Her dad and brother stayed home, and she was joined by mom Sharon, sister-in-law Amber, and niece Aurora for a girls afternoon outing.

The stars of the performance were very sweet to Charlotte, welcoming her to check out their costumes, shoes and props.  She met with the Nutcracker Prince (Stephen Sanford), the Sugar Plum Fairy (Rachael Riley) and Clara (Matisen Douglas).  Charlotte is eager more than ever to explore dancing, and we will begin looking at schools in our neighborhood to give her this opportunity.

Enjoy a gallery of photos from the outing on MLive.com by photographer Chris Clark, http://photos.mlive.com/4469/gallery/charlotte_ponce_goes_backstage_at_the_nutcracker/index.html.

This entry was posted on December 17, 2012. 1 Comment

All Done!

Charlotte’s final major nose surgery was successfully completed today and she is excited to come home tomorrow.  While she may have a few minor surgeries (“revisions” as Dr. Chaiyasate calls them) early next year, we don’t anticipate ear reconstruction until next spring/early summer.

Beaumont tweeted live updates this morning and many Twitter users offered support using the hashtag #healingcharlotte.

This entry was posted on November 30, 2012. 5 Comments

Final Major Nose Surgery

Tomorrow at 8:30 AM, Charlotte is scheduled to complete her final major nose surgery.  The flap which connects her forehead to the transplanted nose skin will be removed and some minor modifications will be made to the nasal structure.

Despite slower than anticipated healing of Charlotte’s forehead, where the skin for her nose was grafted from, we no longer expect that additional skin grafts will be needed to correct this.  The skin should eventually heal with minimal scarring and she will wear bandages until the open wounds will heal.

Charlotte, as ever, is just holding up super during this difficult time.  She is eager to complete the process and despite what must be tremendous pain, she is optimistic and goofy as ever.  We are so blessed that she has such a positive outlook despite such adverse situations.

Beaumont will be doing a live twitter feed updating her progress throughout the surgery.  You can follow along and share your support using the hashtag #healingcharlotte.  Follow the feed online at:  https://twitter.com/search?q=%23healingcharlotte&src=typd

I know we’ve thanked you before, but we can never thank enough the people who have followed Charlotte’s progress throughout this reconstruction and have showed their overwhelming support.  We know that Charlotte is special, and the fact that so many that don’t know her personally have also developed an attachment and love for this brave little girl is so heartwarming and helps her and her family make it through it.

This entry was posted on November 29, 2012. 1 Comment

Doing well, very close to completion

Charlotte is doing quite well since her last surgery, where the surgeon finished the majority of the work on her lips and slimmed down her nose.  The two weeks between the last two surgeries was by far the most difficult for Charlotte.  She had to abstain from solid foods, drinking protein drinks, applesauce and yogurt through a straw.

Her lips were swollen for a few days after the most recent surgery, making it difficult for her to eat for yet a few more days, but by Thanksgiving, she was able to enjoy the meal with her family.  As we sat around the table and shared the things we were thankful for, Charlotte was thankful, “That the raccoon didn’t kill her and that she is still alive today.”

We are thankful for all of the love and support that Charlotte has received throughout this process.  We aren’t sure how we would have made it happen without the generosity of friends, family and strangers.  It was a very humbling Thanksgiving for the Ponce family.

Charlotte went back today to have a stint in her nostrils removed before her next surgery later this week, which is slotted to be the final major one on her nose.  Because of slower than anticipated healing of her forehead (where they grafted skin to build her nose), she is likely to have significant scarring.  So, in about three months, she should be back at Beaumont for a skin graft to help with her forehead.  Additionally, she will have some fat injected into her right cheek, which lays flat since the attack compared to her left cheek, which was untouched.  She still has some hairs on her nose from the graft on her forehead, and she may have to have electrolysis to remove them at a later date.

It is amazing to look at photos of Charlotte from before she started surgeries and to realize how quickly she has undergone this major transformation.  We are looking forward to the day when all is done, but being thankful and making the most of each day from now until then.

Happy holidays to all of you, and may you be safe and joyful during this season!

This entry was posted on November 26, 2012. 2 Comments

Less than a week

Many of you may be following the posts that Sharon has been putting on Charlotte’s Facebook page.  She is home, doing well, considering the frustration at being unable to eat or communicate very well.

Always a little defiant, Charlotte insists on drinking through a straw instead of being fed with a giant syringe.  She has been drinking Carnation instant breakfast and liquid yogurt and applesauce through a straw.

She goes back on Friday for a surgery on her lips, and she’ll have a brand new smile.  They’ll also do some work on her nose, she’s only expected to be in the hospital until Sunday after this.  On the 30th, she’ll have her final nose surgery.

She still wants to get her ear next summer, and it’s completely her choice.  She’s bold and brave and wants this all over with.

Charlotte studies at home

Charlotte studies at home with her tutor the day before her last surgery.

Some press:

This entry was posted on November 10, 2012. 2 Comments